During the COVID-19 pandemic, many patients with a kidney condition had their appointments with their doctor or nurse carried out by telephone or by video call (remote care). Although this was seen to be a good idea for some people, others found it more difficult.
For example, people with learning disabilities, those with mental health conditions and those who are not fluent in English may have come across problems when not seeing their doctor or nurse face-to-face. These groups are sometimes called underserved communities.
If you are living with a kidney condition, would you like to take part in the project?
If you decide to take part, you will be contacted by Patricia Tum from the London South Bank University to arrange a time for you to take part in either a focus group or interview that will take place in-person or online, depending on what you feel most comfortable with. Focus groups will take around 60 minutes and interviews will last around 30 minutes.
Staff surveys will also be conducted to understand their perspectives and experiences in delivering remote care. If you are a health care professional working in kidney care (advanced kidney care, dialysis, transplantation or supportive care) you are eligible to take part. The survey can be found here.
The findings from this research will be used to develop a training Toolkit for both staff and patients to improve the experiences of remote care.
Nicola is Professor of Kidney Care at London South Bank University. She is also honorary nurse consultant in the renal unit at Barts Health NHS Trust. Nicola has worked within the renal speciality for all her career and has extensive clinical, teaching and research experience. Her clinical and research work has focused on prevention and self-management of kidney disease, with a specific interest in health inequalities.
Patricia is a global health researcher and Public Health and Policy MSc graduate of Queen Mary University of London. Her research interests have two broad areas of enquiry: social and psychosocial determinants of migrant and ethnic groups health and barriers to access and provision of equitable health.