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Long Covid

What helps people with Long COVID? A co-production project

In 2022, people living with Long COVID, their carers, and people supporting them from the NHS, charity sectors and communities, came together to coproduce a model of care. Here you can find materials that could help you if you are designing services, or looking for ideas.

What it's like living with Long COVID

Living With Long Covid

This is the experience of Long COVID over time

The key ingredients for a new model of care for Long COVID

A New Model Of Care

Click here to read the full report.

Click here to read the easy read report.

Finally, here is a poem written by one of the contributors about her experience of living with Long COVID and navigating services.

Long COVID poem

What Can I do?

Share, talk and share some more! The more we talk about Long COVID the more it is recognised! If you are living with Long COVID and at work you could use the picture from our work on your signature like this:

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This programme was commissioned by the Joint Programme for Patient, Care and Public Involvement in COVID Recovery, which is a partnership between Guy's and St Thomas' NHS Foundation Trust (GSTT) including Evelina London Children's Hospital and Royal Brompton and Harefield Hospitals (RBH) and King's College Hospital NHS Foundation Trust (KCH). It is funded, over two years, by Guy’s & St Thomas’ Charity and King’s College Hospital Charity to ensure the involvement of patients, carers and the public in ongoing changes and the development of services necessitated by the COVID pandemic.